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Rare with Flair

two best friends with the same rare disease living their best lives

episodes
hello
about us
what is HPS?
contact us
subscribe to podcast

"Flair" / Episodes

78. stitches in Disney, kids in Vegas, ghosts in NOLA: our wild travel memories

by Cassandra Mendez · October 10, 2023

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collage of cass (left) and case (right) while traveling. cass stands in a european alley and smiles brightly while gripping her cane. case smiles as she stands on a beach shore with overcast skies — Cass in Madrid and Case at the beach in Alabama, 2023

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episode categories

"Flair" (47)
Blindness (27)
Disability (29)
Episodes (96)
Hermansky-Pudlak Syndrome (11)

recents

92. cass’ guide dog is retiring?! April 30, 2024
91. doctors at a bar, cute lab mice, & dancing dinosaurs: HPS conference recap April 16, 2024
90. too sick to be healthy, too healthy to be sick April 2, 2024
89. the moments that defined our ten-year friendship March 19, 2024
88. side hustles, plant murder, & melting away the stress March 5, 2024

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Ep 92. cass’ guide dog is retiring?! Cass break

Ep 92. cass’ guide dog is retiring?!

Cass breaks the news that her guide dog, Romana, is retiring. She and Case explain the process, share memories, and even give a Rupert update!

PD: two photo collage of cass (left) and case (right). cass and romana stand outside grinning with eyes closed, both with heads tilted up. case and romana sit side by side on the floor of her kitchen, smiling and holding her head gently. Text reads “episode 92”

#podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 91. doctors at a bar, cute lab mice, & dancing

Ep 90. too sick to be healthy, too healthy to be s

Ep 90. too sick to be healthy, too healthy to be sick

Case + Cass talk candidly about living with chronic illness. They touch on what it’s like be both sick and healthy and celebrate small wins.

#accessibility: a photo of Case and Cass both getting their blood drawn at the same time. Text reads “episode 90”

#podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 89. the moments that defined our ten-year frien

Ep 89. the moments that defined our ten-year friendship

Case + Cass celebrate ten years of friendship, looking back on how their relationship has grown and what makes their relationship unique.

#accessibility: a photo of Cass and Case at the HPS conference in 2015 smiling next to each other. Pink text reads “episode 89”

#podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 88. side hustles, plant murder, & melting away

Ep 88. side hustles, plant murder, & melting away the stress

Case + Cass give updates on their booming side hustles, becoming gym bros, plant mom life, and their other current hobbies.

#accessibility: two photos side by side of Cass and Case doing some of their hobbies. Cass is baking tartes and Case is kayaking. Green text reads “episode 88”

#podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 87. the definitive ranking of all assistive tec

Ep 87. the definitive ranking of all assistive technology

Cass + Case subjectively rank over 20 blind and low vision assistive technologies in a tier list, highlighting their favorite tools.

#accessibility: two photos side by side of Casey and Cassandra with some of their “assistive tech” (Cassandra’s guide dog Romana and Casey’s white cane)

#podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 86. just a couple decisive, self-aware, water s

Ep 86. just a couple decisive, self-aware, water signs: revisiting personality types

Case + Cass revisit their star signs, enneagrams, and Myers-Briggs personalities and talk about what has changed and what they have in common

#accessibility: two recent photos of Cass and Cass side by side. Cassandra is sitting at a table wearing overalls with a coffee and Casey is standing in front of a colorful art mural on a wall. Text reads “episode 86”

#podcast #podcastersofinstagram #podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 85. hold up, sighted people Case + Cass loving

Ep 85. hold up, sighted people

Case + Cass lovingly poke fun at tone-deaf comments they hear from sighted people and how they feel about them

#accessibility: two photos side by side of Cass and Case sipping coffee and tea. Pink text reads “episode 85”

#podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 84. 2024 vision boards: moving forward with cou

Ep 84. 2024 vision boards: moving forward with courage

Cass + Case share what they put on their vision boards for 2024 along with their hopes, dreams, and dispositions for the new year

#accessibility: a photo of Cass and Case dancing together at the HPS conference. Green text reads “episode 84”

#podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 83. getting personal: recapping 2023 Cass + Ca

Ep 83. getting personal: recapping 2023

Cass + Case give a year in review of 2023, walking through each season and sharing the highlights. They also share their hopes for 2024

#accessibility: two photos of Cass and Case side by side. Cassandra is holding an assortment of tartes she baked with a neon sign behind her of the name of her business, Tartes du Soleil. Casey is holding her braille manuscript and wearing a sweatshirt that says Braillist. Text reads Episode 83

#podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 82. blind girl gift guide Case + Cass give gif

Ep 82. blind girl gift guide

Case + Cass give gift suggestions for the blind, low vision, chronically ill, or any person in your life in time for the holiday season

#accessibility: two photos of Case and Cass smiling in front of their Christmas trees. Case is holding and gift and Cass is next to her guide dog, Romana. Text reads “episode 82”

#podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 81. we answer your burning questions in our fir

Ep 81. we answer your burning questions in our first q&a

Cass + Case answer some listener questions in their very first Q & A on a variety of topics from fictional destinations to when to disclose or mask disability

#accessibility: a photo of Cass and Case on a stage with microphones. Pink text reads “episode 81”

#podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 80. concerts we’ve cried at, guilty pleasure

Ep 80. concerts we’ve cried at, guilty pleasure albums, and our teenage music tastes

Case + Cass list their top artists and compare to their 2020 episode. They also talk about music they loved as teens and still love today

#accessibility: two photos side by side of Cass and Case at concerts. Green text reads “episode 80”

#podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 79. our lives are one huge contradiction Cass

Ep 79. our lives are one huge contradiction

Cass and Case process how they think others perceive them, how they perceive themselves, and how they perceive others with their disabilities

#accessibility: a photo of Case and Cass in front of a shiny red backdrop doing kissy faces. Pink text reads “Episode 79”

#podcast #podcastersofinstagram #podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 78. stitches in Disney, kids in Vegas, ghosts i

Ep 78. stitches in Disney, kids in Vegas, ghosts in NOLA: our wild travel memories

Cass + Case talk about trips they’ve taken from childhood through adulthood and recount some memorable, hilarious travel memories

#accessibility: Two photos side by side of Cass and Case traveling. Cass poses in Madrid and Case smiles on the beach in Alabama.

#podcast #podcastersofinstagram #podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 77. only disabled friends talk about this Case

Ep 77. only disabled friends talk about this

Case + Cass talk about the very specific, disability-related topics they chat about frequently that other people may not understand.

#accessibility: a photo of Cass and Case together wearing matching vests that says “Hermansky Pudlak syndrome research team”

#podcast #podcastersofinstagram #podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 76. will we complete our fall bucket list? Cas

Ep 76. will we complete our fall bucket list?

Cass + Case create their fall bucket lists, complete with things they want to bake, watch, wear, and smell this season.

#accessibility: a photo of Case and Cass eating together in the fall. Text reads “Episode 76”

#podcast #podcastersofinstagram #podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 75. giving parenting advice without being paren

Ep 75. giving parenting advice without being parents

Cass + Case give a letter to parents of kids with disabilities by sharing their experiences and stories growing up.

#accessibility: two photos side by side of Cass and Case with their parents while traveling. Pink text reads “episode 75”

#podcast #podcastersofinstagram #podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 74. a quarter-life fashion crisis Case + Cass

Ep 74. a quarter-life fashion crisis

Case + Cass give an update on how their personal style has evolved over the past three years and some new pieces they love

#accessibility: two photos of Cass and Case next to each other. Cass is wearing a pink Barbie dress and Casey is wearing a floral skirt with Docs.

#podcast #podcastersofinstagram #podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 73. the alternate life where we wouldn’t be f

Ep 73. the alternate life where we wouldn’t be friends

Case + Cass talk through what their lives would be like if they didn’t have Hermansky-Pudlak Syndrome, for better and for worse.

#accessibility: two photos of Case and Cass as children. Pink text reads “episode 73”

#podcast #podcastersofinstagram #podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

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episodes
hello
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