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welcome to Rare with Flair!

we’re just two best friends with the same rare disease living our best lives.

join us on our journey to show the beauty and normalcy in disability. from navigating social situations with low vision to our love for fashion, we’ll invite you into our unique chronically ill, plant loving, cane using, home decorating, accessibility advocating world. we can’t wait for you to come along!

— Casey & Cassandra

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collage of cass (left) and case (right). each woman wears a mask and their eyes shine behind their glasses as they each have their blood drawn in a cluttered lab

Hermansky-Pudlak Syndrome / Rare episodes

May 9, 2023

68. the NIH has my colon! the research episode

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Cass + Case talk about their experiences participating in medical research in different contexts, including the National Institutes of Health

case and cass smile together while standing in front of a large tissue paper tree with photos pinned to it

Flair episodes / Personalities

April 25, 2023

67. a how-to guide on how to annoy us

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Cass + Case talk about their pet peeves and laugh about the small things that bother them, all in good fun

selfie of case and cass, smiling widely with their heads together

Conference recap / Hermansky-Pudlak Syndrome

April 11, 2023

66. HPS conference: reuniting our community after four years

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Case + Cass recap their time at the HPS conference after not meeting as a community since 2019 and all the unique times it involves

two photo collage of casey and cassandra. casey holds her cane as she stands and smiles in front of a log cabin, and cassandra laughs with one leg up on a bench as romana sits beside her

Advocacy / Hermansky-Pudlak Syndrome / Rare episodes / Storytime / Vision

March 28, 2023

65. feeling like a burden

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Cass + Case talk about times they’ve felt like a burden due to their blindness or chronic illnesses and ways they address those feelings

casey and cassandra posing together in the summertime. they both wear national organization for albinism & hypopigmentation shirts and mickey ears and stand outside smiling. they each wear a pair of crocs

March 14, 2023

64. we can’t live without this!!!

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Case + Cass gush about their favorite, must-have products that have become indispensable to them

photo of casey and cassandra outside in front of a jenis ice cream shop. case and cass have their arms around each other and smile in the daylight. case holds her pink-handled cane and cass holds yellow lab guide dog romana's leash as romana glances off to the right

Rare episodes / Storytime

February 28, 2023

63. our Uber funny rideshare stories

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Cass + Case talk about their wildest rideshare stories, both disability-related and not, as well as some positive experiences

photo of casey and cassandra at an airport. casey, a 5’ blonde with shoulder length hair and glasses l, smiles and holds her pink handled cane and her carry on. cassandra, a 5’9 blonde with a long pixie cut and glasses, stands and grins broadly and stands by her carry on and yellow lab guide dog romana

February 14, 2023

62. pack your bags, we’re traveling together!

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Casey + Cassandra talk about traveling, including what and how they pack and how they stay sane on the plane.

two photo collage of young case (left) and cass (right). case, around 18, peers overtop a copy of harry potter and the goblet of fire with wide eyes and colorful glasses. cass, about 17, peers overtop a copy of the help while looking mischievously and wears a hot pink top, jeans, and colorful rain boots

Assistive technology / Rare episodes / Vision

January 31, 2023

61. is reading an audiobook really reading?

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Cass + Case talk all things books, describing their reading journeys, favorite books, and accessible reading

Assistive technology / Rare episodes / Vision

January 17, 2023

60. the great blind baking show

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Case + Cass talk about cooking and baking with low vision, mentioning tools they use to make working in the kitchen easier

Flair episodes / Year in review

December 20, 2022

59. recapping a wild & wacky year

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Cass + Case recap their 2022 including what they did, watched, and listened to, as they give more insight into their personal lives.