episodes listen to our latest eps!

welcome to Rare with Flair!

we’re just two best friends with the same rare disease living our best lives.

join us on our journey to show the beauty and normalcy in disability. from navigating social situations with low vision to our love for fashion, we’ll invite you into our unique chronically ill, plant loving, cane using, home decorating, accessibility advocating world. we can’t wait for you to come along!

— Casey & Cassandra

Interested in partnering with us?

partner with Rare with Flair

Advocacy / Rare episodes

July 4, 2023

71. oversharing on facebook: our online advocacy experience

Podcast: Play in new window | Download

Cass + Case talk about their online advocacy journeys and how their approaches and feelings have changed over time

June 20, 2023

70. live like us for a day!

Podcast: Play in new window | Download

Cass + Case walk through a “day in the life” and share their daily routines from morning to night along with weekly and monthly activities.

Cartoons / Flair episodes

May 23, 2023

69. cass & case’s cartoon adventures

Podcast: Play in new window | Download

Case + Cass talk about their love of cartoons by reminiscing on shows they watched as kids and shows they’ve watched together as adults

collage of cass (left) and case (right). each woman wears a mask and their eyes shine behind their glasses as they each have their blood drawn in a cluttered lab

Hermansky-Pudlak Syndrome / Rare episodes

May 9, 2023

68. the NIH has my colon! the research episode

Podcast: Play in new window | Download

Cass + Case talk about their experiences participating in medical research in different contexts, including the National Institutes of Health

case and cass smile together while standing in front of a large tissue paper tree with photos pinned to it

Flair episodes / Personalities

April 25, 2023

67. a how-to guide on how to annoy us

Podcast: Play in new window | Download

Cass + Case talk about their pet peeves and laugh about the small things that bother them, all in good fun

selfie of case and cass, smiling widely with their heads together

Conference recap / Hermansky-Pudlak Syndrome

April 11, 2023

66. HPS conference: reuniting our community after four years

Podcast: Play in new window | Download

Case + Cass recap their time at the HPS conference after not meeting as a community since 2019 and all the unique times it involves

two photo collage of casey and cassandra. casey holds her cane as she stands and smiles in front of a log cabin, and cassandra laughs with one leg up on a bench as romana sits beside her

Advocacy / Hermansky-Pudlak Syndrome / Rare episodes / Storytime / Vision

March 28, 2023

65. feeling like a burden

Podcast: Play in new window | Download

Cass + Case talk about times they’ve felt like a burden due to their blindness or chronic illnesses and ways they address those feelings

casey and cassandra posing together in the summertime. they both wear national organization for albinism & hypopigmentation shirts and mickey ears and stand outside smiling. they each wear a pair of crocs

March 14, 2023

64. we can’t live without this!!!

Podcast: Play in new window | Download

Case + Cass gush about their favorite, must-have products that have become indispensable to them

photo of casey and cassandra outside in front of a jenis ice cream shop. case and cass have their arms around each other and smile in the daylight. case holds her pink-handled cane and cass holds yellow lab guide dog romana's leash as romana glances off to the right

Rare episodes / Storytime

February 28, 2023

63. our Uber funny rideshare stories

Podcast: Play in new window | Download

Cass + Case talk about their wildest rideshare stories, both disability-related and not, as well as some positive experiences

photo of casey and cassandra at an airport. casey, a 5’ blonde with shoulder length hair and glasses l, smiles and holds her pink handled cane and her carry on. cassandra, a 5’9 blonde with a long pixie cut and glasses, stands and grins broadly and stands by her carry on and yellow lab guide dog romana

February 14, 2023

62. pack your bags, we’re traveling together!

Podcast: Play in new window | Download

Casey + Cassandra talk about traveling, including what and how they pack and how they stay sane on the plane.