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welcome to Rare with Flair!

we’re just two best friends with the same rare disease living our best lives.

join us on our journey to show the beauty and normalcy in disability. from navigating social situations with low vision to our love for fashion, we’ll invite you into our unique chronically ill, plant loving, cane using, home decorating, accessibility advocating world. we can’t wait for you to come along!

— Casey & Cassandra

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two photo collage of cass (left) and case (right). cass and romana stand outside grinning with eyes closed, both with heads tilted up. case and romana sit side by side on the floor of her kitchen, smiling and holding her head gently

Mobility tools / Rare episodes / Vision

April 30, 2024

92. cass’ guide dog is retiring?!

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Cass breaks the news that her guide dog, Romana, is retiring. She and Case explain the process, share memories, and even give a Rupert update!

Conference recap / Hermansky-Pudlak Syndrome

April 16, 2024

91. doctors at a bar, cute lab mice, & dancing dinosaurs: HPS conference recap

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Case + Cass recap the 2024 HPS Conference. They discuss key moments, funny interactions, and overall feelings about this special event.

cass and case sit at a table covered in medical supplies in a hotel conference room. they wear masks and extend their arms as healthcare staff draw their blood

Advocacy / Chronic illness / Hermansky-Pudlak Syndrome / Rare episodes

April 2, 2024

90. too sick to be healthy, too healthy to be sick

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Case + Cass talk candidly about living with chronic illness. They touch on what it’s like be both sick and healthy and celebrate small wins.

casey and cassandra smile in a hotel ballroom with their arms around each other

Flair episodes / Friendship

March 19, 2024

89. the moments that defined our ten-year friendship

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Case + Cass celebrate ten years of friendship, looking back on how their relationship has grown and what makes their relationship unique.

two photo collage of cass (left) and case (right). cass garnishes a small tart on a stand to her right in her colorful kitchen, wearing a pink vintage dress. case sits in a kayak, gazing off to the right wearing sunglasses and a life jacket against a serene backdrop of trees

Flair episodes / What are we into lately

March 5, 2024

88. side hustles, plant murder, & melting away the stress

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Case + Cass give updates on their booming side hustles, becoming gym bros, plant mom life, and their other current hobbies.

two photo collage of cass (left) and case (right). cass smiles outside, dressed in hiking gear in front of a waterfall with her guide dog romana at her side. casey adjusts her hair candidly as she stands outside of a shop window, gripping her white cane

Assistive technology / Rare episodes / Tier list / Vision

February 20, 2024

87. the definitive ranking of all assistive technology

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Cass + Case subjectively rank over 20 blind and low vision assistive technologies in a tier list, highlighting their favorite tools.

86. just a couple decisive, self-aware, water signs: revisiting personality types

Flair episodes / Personalities

February 6, 2024

86. just a couple decisive, self-aware, water signs: revisiting personality types

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Case + Cass revisit their star signs, enneagrams, and Myers-Briggs personalities and talk about what has changed and what they have in common

collage of cass (left) and case (right). cass stands outside and drinks from a coffee up and holds a croissant. case sips tea from a floral teacup and looks at the camera

Advocacy / Rare episodes / Storytime / Vision

January 23, 2024

85. hold up, sighted people

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Case + Cass lovingly poke fun at tone-deaf comments they hear from sighted people and how they feel about them

case and cass stand back to back in their party dresses, laughing and singing as they dance on a colorfully lit dance floor

Flair episodes / Year in review

January 9, 2024

84. 2024 vision boards: moving forward with courage

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Cass + Case share what they put on their vision boards for 2024 along with their hopes, dreams, and dispositions for the new year

Flair episodes / Year in review

December 19, 2023

83. getting personal: recapping 2023

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Cass + Case give a year in review of 2023, walking through each season and sharing the highlights. They also share their hopes for 2024