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welcome to Rare with Flair!

we’re just two best friends with the same rare disease living our best lives.

join us on our journey to show the beauty and normalcy in disability. from navigating social situations with low vision to our love for fashion, we’ll invite you into our unique chronically ill, plant loving, cane using, home decorating, accessibility advocating world. we can’t wait for you to come along!

— Casey & Cassandra

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side by side collage of Cass (left) and Case (right). a young Cass holds her white cane and stands confidently outside the National Institutes of Health (NIH) building. Case wears a white lab coat and sits in a clinical setting, intently writing on a clipboard

Advocacy / Hermansky-Pudlak Syndrome / Rare episodes / Vision

April 29, 2025

118. “do you want us to spell our disease’s name for you?”

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Case + Cass talk healthcare advocacy, teaching doctors, and navigating the medical world with vision impairment + rare disease.

Case + Cass wear elegant, long dresses and smile in front of a festive backdrop made of shiny blue streamers and balloons in various shades of blue, white, and purple

Conference recap / Hermansky-Pudlak Syndrome

April 15, 2025

117. few but many: HPS conference 2025

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Case + Cass recap the HPS Network Conference weekend—the highs, lows, and the six-minute walk for awareness.

Cass + Case playfully pose on either side of a person dressed in a giant sunscreen bottle costume labeled "SPF." They are both puckering their lips as if blowing kisses to the costumed character.

Flair episodes / Style

April 1, 2025

116. rare but radiant: our new and improved skincare routines

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Case + Cass share their skincare faves—from holy-grail cleansers to sunscreens, moisturizers, and acne must-haves.

Cass (left) poses under the vibrant "WonderBus" festival arch, wearing a white flowy dress and sunglasses, while Case (right) excitedly celebrates at a packed stadium before the Eras tour, dressed in a pastel ombre top and green shorts.

Flair episodes / Music / Rare episodes

March 18, 2025

115. internet fan meetups, unicorn snot, & trying to see the jumbotron

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Case + Cass share concert stories, artist and fan meet-ups, and the accommodations that help them rock out—even at music festivals!

Cass (left) and Case (right) stand together outdoors on a paved walkway, smiling at the camera. Both are holding white canes. Behind them are leafless trees, a wooden bench, and a cityscape with brick buildings under an overcast sky

Advocacy / Rare episodes

March 4, 2025

114. please, read the room!!!

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Case + Cass discuss reading the room—when to disclose disabilities for accommodations and when it’s okay to let things go.

case and cass smile and stand together in a colorful outdoor walkway decorated with large artificial yellow and white flowers and hanging multicolored pinwheels. both women hold their white canes and stand closely with their arms around each other

Flair episodes / Personalities

February 18, 2025

113. an instagram reel revealed who we really are

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Case + Cass explore their personalities in a new way through the lens of personality tests from Instagram reels.

selfie of case and cass at Chelsea Market in New York. they smile widely, their heads close together in front of a lit archway made of string lights

Rare episodes / Storytime

February 4, 2025

112. a grocery delivery shopper yelled at cass??

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Case + Cass talk about the grocery delivery services they use, shocking mishaps, and the kindest shoppers who went above and beyond.

Cass (left) and Case (right) enjoy an afternoon tea. They smile warmly and toast with delicate teacups in front of a tiered tray of sandwiches and pastries.

Advocacy / Rare episodes / Vision

January 21, 2025

111. lifting the burden: how we pay it forward

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Case + Cass share how they pay it forward, from thanking friends for rides to showing care for loved ones in thoughtful ways.

Case, Cass, and a friend of theirs dancing on a lit dance floor, illuminated by colorful lighting that gives the scene a vibrant, purple-pink hue. The background features a stage with chairs and a large digital screen displaying the words "STRONGER TOGETHER" in bold letters.

Flair episodes / Year in review

January 7, 2025

110. are we ready to thrive in 2025?

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Case + Cass share their 2025 vision boards, their word for the year, and what they plan to stop, start, or continue in the new year.

two photo collage of cass (left) and case (right). cass stands outside the stadium accessible entrance before the eras tour. she holds her white cane and makes a heart with her hands that shows her friendship bracelets and smiles broadly. case smiles happily in her selfie, sporting her new chin-length ginger hair while wearing am embroidered cardigan.

Flair episodes / Year in review

December 24, 2024

109. our wildest vision board dreams came true!

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Case + Cass review their vision boards for 2024 to see how their years measured up. They also give highlights of their year in seasons.