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welcome to Rare with Flair!

we’re just two best friends with the same rare disease living our best lives.

join us on our journey to show the beauty and normalcy in disability. from navigating social situations with low vision to our love for fashion, we’ll invite you into our unique chronically ill, plant loving, cane using, home decorating, accessibility advocating world. we can’t wait for you to come along!

— Casey & Cassandra

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collage of cass and case in the hospital. cassandra (left) stands in a hallway wearing a hospital gown and wheeling an IV stand. case's photo is a selfie in a hospital gown and an oxygen cannula in her nose

Episodes / Hermansky-Pudlak Syndrome

October 6, 2020

6. on illness, life, & death

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Casey + Cassandra talk through their chronic illness journeys. They also touch on mental health, terminal illness, survivor’s guilt, and being content with their present.

collage of early elementary aged casey and cassandra. casey wears her red and white school uniform and looks up shyly holding a book. cassandra runs out of a school bus with a wide smile and messy hair with a graphic tee and denim skirt

Blindness / Episodes

September 22, 2020

5. school days, accommodations, & finding the lunch table

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Cassandra + Casey reminisce on their elementary through college years. They discuss the tools they used and the social aspects of growing up blind.

casey and cassandra hugging and smiling at the camera, march 2019

Disability / Episodes

September 8, 2020

4. how do we say this…

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Casey + Cassandra dive headfirst into terms surrounding disability and blindness. They discuss which terms are appropriate and their personal experiences with them. They finish by ranting about why exploiting people with disabilities for inspiration is so damaging.

collage of cassandra and casey standing outside. cassandra wears a striped top, denim skirt-jumper, white knee high socks, and white sneakers. casey wears a lavender sleeveless fit and flare dress and white sneakers

"Flair" / Episodes

August 25, 2020

3. adding in the “flair:” style & confidence

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Cassandra + Casey add in the “flair” of Rare with Flair by describing their love of fashion and their personal styles. They also talk about confidence and owning what makes them unique.

casey and cassandra pose in a hallway, making duck faces and holding up their white canes

Blindness / Episodes

August 11, 2020

2. canes, guide dogs, & faking disability

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Casey + Cassandra dive into mobility tools for the blind – the white cane and the guide dog – and why they use them. They also touch on fake service dogs, being accused of faking blindness, and their “blind girl moments” in daily life.