Rare with Flair

two best friends with the same rare disease living their best lives

rare with flair fundraiser

render of a white bucket hat with the rare with flair logo on it. the logo is a cartoon render of cassandra (left) with a colorful pink and blue dress, short blonde hair, and pink sunglasses along with her yellow lab guide dog romana in harness and pink bandana. casey (right) wears a blue dress and black sunglasses with pink lenses, and short blonde hair, holding her pink-handled white cane

We have an exciting announcement: WE HAVE BUCKET HATS!!!

What does this mean? We’re selling bucket hats with an artistic rendition of our show’s artwork embroidered on them in support of the HPS Network! The hats are white and come in one size.

render of a white bucket hat with the rare with flair logo on it. the logo is a cartoon render of cassandra (left) with a colorful pink and blue dress, short blonde hair, and pink sunglasses along with her yellow lab guide dog romana in harness and pink bandana. casey (right) wears a blue dress and black sunglasses with pink lenses, and short blonde hair, holding her pink-handled white cane
Preview of the bucket hat

frequently asked questions

Who does our fundraiser support? All the profits generated from our campaign will go directly to the Hermansky-Pudlak Syndrome Network, the 501(c)(3) nonprofit organization for our rare disease. For those unfamiliar with HPS, check out our what is HPS page. The HPS Network seeks to find a cure for pulmonary fibrosis, the terminal lung disease many of us will get in our lives, including Cassandra. The funds given to the Network will help us get to that cure, whether by raising awareness, funding research, or organizational costs to keep them up and running.

How long will this fundraiser last and when will I get my hat? We’re starting the campaign on Tuesday, February 28, 2023 (World Rare Disease Day) and running it until Friday, March 24, 2023 (about a month). In order to get your hat, we need to reach our print minimum of 14 hats. Once we reach our goal, you’ll receive your hat 12 days after the campaign ends, so by mid-April you’ll be ready to rock your cute new bucket hat for the spring!

Where can I buy a hat? You can access the Rare with (Headwear) Flair campaign here. You can also find the links in our Instagram and Twitter bios as well as our Facebook page.