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Rare with Flair

two best friends with the same rare disease living their best lives

episodes
hello
about us
what is HPS?
contact us
subscribe to podcast
contribute to us on Buy Me a Coffee

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episode categories

"Flair" (59)
Blindness (33)
Disability (35)
Episodes (120)
Hermansky-Pudlak Syndrome (15)
Uncategorized (3)

recents

119. we’re each other’s biggest influencer May 13, 2025
118. “do you want us to spell our disease’s name for you?” April 29, 2025
117. few but many: HPS conference 2025 April 15, 2025
116. rare but radiant: our new and improved skincare routines April 1, 2025
115. internet fan meetups, unicorn snot, & trying to see the jumbotron March 18, 2025

Archives

through the years

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episodes
hello
about us
what is HPS?
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