43. is THAT how close i hold my phone?

hi hello hey, and welcome to another episode!

Originally, this episode was going to be our Hermansky-Pudlak Syndrome Conference episode; unfortunately, the conference was cancelled this year (again) due to Covid concerns for our very vulnerable population. While we totally understand this decision, it’s still a bummer since we look forward to Conference every year and have been missing our community since 2019. Regardless, we still wanted to talk about the importance of community and meeting people like you! In this episode, we talk about our first experiences meeting people with albinism or HPS and what that feels like. If you’re still searching for community, we highly encourage you all to seek it out!

photo of five women with HPS, including case and cass in the middle. from left to right, a brunette with a bob, case sporting a light blonde pixie cut, cass with a platinum blonde pixie, an identical twin brunette, and a woman with long, ashy blonde hair holding a white cane
Case and Cass with some of their HPS community, 2016

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1 Response

  1. Hi!
    I’m a legally blind cellist. I travel the world playing and teaching. I’m professor of cello at Texas Tech University. I’m grateful to find Casey on TikTok and now listening to the podcast. I share so many of your experiences – and probably a lot more! I’m so appreciative of your work!
    Please reach out – Jeffrey.Lastrapes@ttu.edu
    JeffreyLastrapes.com

    Wishing you continued success and positivity!
    Jeff Lastrapes