Category: Rare episodes

Case + Cass share stories and talk about their recent experience at the biennial National Organization for Albinism and Hypopigmentation’s 2022 conference in Orlando, FL.

Mobility tools / Rare episodes / Vision

July 5, 2022

48. mobility tools therapy sesh

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Case + Cass give an update about their current feelings surrounding using a cane & guide dog with the mixed emotions using tools brings.

Albinism / Chronic illness / Hermansky-Pudlak Syndrome / Rare episodes / Vision

June 21, 2022

47. here comes the bridesmaid: being in a wedding with a rare disease

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Cass + Case talk about being bridesmaids and navigating all aspects of their various disabilities at weddings.

young casey and cassandra sitting on the edge of a concrete fountain with lights. they embrace and smile at they camera. casey wears a red maxi dress and shoulder-length light blonde hair, and cassandra wears a pink top with a black and white striped maxi skirt with her long, medium blonde hair

Advocacy / Rare episodes / Storytime

May 10, 2022

45. i’m no inspiration

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Cassandra + Casey talk about people with disabilities getting exploited for “inspiration.” They give examples from their lives and what it means to be inspiring.

Advocacy / Rare episodes

April 26, 2022

44. the beginner’s guide to disclosing disability

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Cass + Case talk about disclosing their various disabilities in the workplace, dating, friendships, and beyond.

photo of five women with HPS, including case and cass in the middle. from left to right, a brunette with a bob, case sporting a light blonde pixie cut, cass with a platinum blonde pixie, an identical twin brunette, and a woman with long, ashy blonde hair holding a white cane

Rare episodes

April 12, 2022

43. is THAT how close i hold my phone?

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Case + Cass talk about the importance of community in attending conferences for their various conditions. They share memories and laugh about seeing people holding their phones close to their face… just like them!

Albinism / Rare episodes

March 29, 2022

42. every “albino” myth, debunked

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Case + Cass debunk common “albino” myths and stereotypes. Do people with albinism really have red eyes or magic powers?

Chronic illness / Hermansky-Pudlak Syndrome / Rare episodes / Storytime

March 1, 2022

40. this one’s TMI…

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Cass + Case tell wild, potentially embarrassing stories on their experiences with chronic illness. This one might get TMI with blood, vomit, urine, and poop, so listen at your own risk!