118. “do you want us to spell our disease’s name for you?”
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Case + Cass talk healthcare advocacy, teaching doctors, and navigating the medical world with vision impairment + rare disease.
Category: Hermansky-Pudlak Syndrome
117. few but many: HPS conference 2025
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Case + Cass recap the HPS Network Conference weekend—the highs, lows, and the six-minute walk for awareness.
98. rolling out the red carpet for the albinism conference
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Case + Cass recap their time at the albinism conference in California. They talk about sessions they led and spending time with friends.
96. let’s talk about blood!!!
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Case + Cass talk about their bleeding disorder, how it affects them, and how they manage it. They also share some not-too-gory stories.
91. doctors at a bar, cute lab mice, & dancing dinosaurs: HPS conference recap
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Case + Cass recap the 2024 HPS Conference. They discuss key moments, funny interactions, and overall feelings about this special event.
73. the alternate life where we wouldn’t be friends
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Case + Cass talk through what their lives would be like if they didn’t have Hermansky-Pudlak Syndrome, for better and for worse.
68. the NIH has my colon! the research episode
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Cass + Case talk about their experiences participating in medical research in different contexts, including the National Institutes of Health
66. HPS conference: reuniting our community after four years
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Case + Cass recap their time at the HPS conference after not meeting as a community since 2019 and all the unique times it involves
65. feeling like a burden
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Cass + Case talk about times they’ve felt like a burden due to their blindness or chronic illnesses and ways they address those feelings
40. this one’s TMI…
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Cass + Case tell wild, potentially embarrassing stories on their experiences with chronic illness. This one might get TMI with blood, vomit, urine, and poop, so listen at your own risk!