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Rare with Flair

two best friends with the same rare disease living their best lives

episodes
hello
about us
what is HPS?
contact us
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"Flair" / Episodes
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110. are we ready to thrive in 2025?

by Cassandra Mendez · January 7, 2025

Podcast: Play in new window | Download

Case, Cass, and a friend of theirs dancing on a lit dance floor, illuminated by colorful lighting that gives the scene a vibrant, purple-pink hue. The background features a stage with chairs and a large digital screen displaying the words "STRONGER TOGETHER" in bold letters. — Cass + Case on the dance floor at the HPS conference, 2024

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Previous story 109. our wildest vision board dreams came true!

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episode categories

"Flair" (56)
Blindness (31)
Disability (32)
Episodes (113)
Hermansky-Pudlak Syndrome (13)
Uncategorized (1)

recents

110. are we ready to thrive in 2025? January 7, 2025
109. our wildest vision board dreams came true! December 24, 2024
108. the wound that never heals: our discrimination stories December 10, 2024
107. blind gamer girlies November 27, 2024
106. we’re delulu about what we look like in public November 12, 2024

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rare.with.flair

Ep 107. blind gamer girlies Case + Cass chat abou

Ep 107. blind gamer girlies

Case + Cass chat about childhood video games, what they play now, and their tips for making gaming more accessible with low vision.

Case + Cass talk about how, despite their best efforts, they always look a little odd in public when trying to look “normal.”

#accessibility: Case and Cass pose smiling with their canes in front of The Book Loft in Ohio

#podcast #podcastersofinstagram #podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 106. we’re delulu about what look like in pub

Ep 106. we’re delulu about what look like in public

Case + Cass talk about how, despite their best efforts, they always look a little odd in public when trying to look “normal.”

#accessibility: two photos of Case and Cass side by side candle making. They are both looking closely at what they are doing (while trying to look normal). Text reads episode 106.

#podcast #podcastersofinstagram #podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 105. case & cass’ carTWOon adventures Case +

Ep 105. case & cass’ carTWOon adventures

Case + Cass talk about four more cartoons they’ve watched together in the last year and a half and plug other cartoons they’ve seen lately.

#accessibility: a photo of Cass and Case hugging in Cassandra’s living room. Text reads “episode 105”

#podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 104. did they really just say that?! Case + Ca

Ep 104. did they really just say that?!

Case + Cass share the uncomfortable, rude, silly, and ableist things people have said to them in public about their vision.

#accessibility: a photo of Cass and Case shopping together and looking through rack of clothing. Text reads “episode 94”

#podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 103. live from columbus: recapping our amazing

Ep 103. live from columbus: recapping our amazing weekend

Case visits Cass in Columbus! The two recap their jam packed weekend of candles, bookstores, bakeries, and the renaissance fair.

#accessibility A photo of Cass and Casey standing in front of a large castle at the Ren Fair dressed as Pearl and Lapis Lazuli from Steven Universe. Text reads episode 103

#podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 102. white cane hot takes Case + Cass bought n

Ep 102. white cane hot takes

Case + Cass bought new canes and give their reviews. They also share hot takes on different cane styles and explain the benefits of cane use.

#accessibility: two photos of Case ms Cass side by side. They both pose with their new canes. Text reads “episode 102”

#podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 101. cass has curly hair & case is running?! C

Ep 101. cass has curly hair & case is running?!

Case + Cass talk about what they’ve been into lately, including self-care, hobbies, side hustles, and media they’ve enjoyed.

#accessibility: two photos of Case ms Cass side by side. Cass is wearing her hair naturally curly and Case is running. Pink text reads “episode 101”

#podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 100. over one hundred hours of us yapping!!! C

Ep 100. over one hundred hours of us yapping!!!

Case + Cass celebrate releasing over 100 episodes and list their all-time favorites along with other episodes they’re proud of.

#accessibility: a photo (taken by Rick Guidotti of @positiveexposure) of Cassandra and Casey smiling together at the NOAH Conference. Text reads “episode 100”

#podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 99. the unhappiest place on earth: discriminati

Ep 99. the unhappiest place on earth: discrimination at disneyland

Case + Cass share their humiliating experience trying to get the DAS pass accommodation on their recent trip to Disneyland.

#accessibility: a photo of Cass and Case in front of the Disneyland castle. Pink text reads “Episode 99”

#podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 98. rolling out the red carpet for the albinism

Ep 98. rolling out the red carpet for the albinism conference

Case + Cass recap their time at the NOAH conference in California. They talk about sessions they led and spending time with friends.

#accessibility: a photo of Case and Cass smiling at each other on a red carpet in front of a backdrop that says “NOAH Changes lives”. They are both wearing floor length dresses and are holding their canes. Text reads “episode 98”

#podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 97. how we stopped word-vomiting all our strugg

Ep 97. how we stopped word-vomiting all our struggles

Case + Cass touch on what oversharing looks like and how they used to give too much information about their health and life.

#accessibility: a photo of Cass and Case leading a session at the HPS Conference. They are standing in front of a crowd speaking. Pink text reads “episode 97”

#podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 96. let’s talk about blood!!! Case + Cass ta

Ep 96. let’s talk about blood!!!

Case + Cass talk about their bleeding disorder, how it affects them, and how they manage it. They also share some not-too-gory stories.

#accessibility: two photos side by side of Cass and Case. Cass is getting a blood transfusion and Case is getting blood drawn. Text reads “episode 96”

#podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 95. breaking the rules of home decor, one vinta

Ep 95. breaking the rules of home decor, one vintage piece at a time

Case + Cass run through the things they’ve changed in their condos since early 2022 and how their homes have evolved to be more “them.”

#accessibility: Two photos of Cass and Case side by side in their homes. Cass is sitting in a swing next to her plants and Case is sitting on her back patio with her dog. Pink text reads “episode 95”

#podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 94. fear of photos or light sensitivity: the ph

Ep 94. fear of photos or light sensitivity: the photophobia episode

Case + Cass talk all about their light sensitivity, and how it affects them outdoors and indoors, including their favorite sunglasses.

#accessibility: a photo of Cass and Cass in EPCOT with matching pink shirts. They are both smiling with sunglasses on. Text reads “episode 94”

#podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 93. the great cardigan debate: our style roots

Ep 93. the great cardigan debate: our style roots

Case + Cass talk about the 8 style roots and which 3 describe their personal styles. They also list pieces that push their style boundaries

#accessibility: Case and Cass sit side by side at a table in a bakery, both wearing cream colored sweaters and smiling. Pink text reads “episode 93”

#podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 92. cass’ guide dog is retiring?! Cass break

Ep 92. cass’ guide dog is retiring?!

Cass breaks the news that her guide dog, Romana, is retiring. She and Case explain the process, share memories, and even give a Rupert update!

PD: two photo collage of cass (left) and case (right). cass and romana stand outside grinning with eyes closed, both with heads tilted up. case and romana sit side by side on the floor of her kitchen, smiling and holding her head gently. Text reads “episode 92”

#podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 91. doctors at a bar, cute lab mice, & dancing

Ep 90. too sick to be healthy, too healthy to be s

Ep 90. too sick to be healthy, too healthy to be sick

Case + Cass talk candidly about living with chronic illness. They touch on what it’s like be both sick and healthy and celebrate small wins.

#accessibility: a photo of Case and Cass both getting their blood drawn at the same time. Text reads “episode 90”

#podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 89. the moments that defined our ten-year frien

Ep 89. the moments that defined our ten-year friendship

Case + Cass celebrate ten years of friendship, looking back on how their relationship has grown and what makes their relationship unique.

#accessibility: a photo of Cass and Case at the HPS conference in 2015 smiling next to each other. Pink text reads “episode 89”

#podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 88. side hustles, plant murder, & melting away

Ep 88. side hustles, plant murder, & melting away the stress

Case + Cass give updates on their booming side hustles, becoming gym bros, plant mom life, and their other current hobbies.

#accessibility: two photos side by side of Cass and Case doing some of their hobbies. Cass is baking tartes and Case is kayaking. Green text reads “episode 88”

#podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

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episodes
hello
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what is HPS?
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Rare with Flair © 2025 | designed by Cassandra Mendez