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Rare with Flair

two best friends with the same rare disease living their best lives

episodes
hello
about us
what is HPS?
contact us
subscribe to podcast
contribute to us on Buy Me a Coffee

Blindness / Disability / Episodes

111. lifting the burden: how we pay it forward

by Cassandra Mendez · January 21, 2025

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Cass (left) and Case (right) enjoy an afternoon tea. They smile warmly and toast with delicate teacups in front of a tiered tray of sandwiches and pastries. — Case + Cass at tea, 2024

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episode categories

"Flair" (58)
Blindness (33)
Disability (35)
Episodes (119)
Hermansky-Pudlak Syndrome (15)
Uncategorized (3)

recents

118. “do you want us to spell our disease’s name for you?” April 29, 2025
117. few but many: HPS conference 2025 April 15, 2025
116. rare but radiant: our new and improved skincare routines April 1, 2025
115. internet fan meetups, unicorn snot, & trying to see the jumbotron March 18, 2025
114. please, read the room!!! March 4, 2025

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rare.with.flair

a bi-weekly podcast where two best friends with the same rare disease share their lives to showcase the beauty and normalcy of disability 🌸

Ep 118. “do you want us to spell our disease’s

Ep 118. “do you want us to spell our disease’s name for you?”

Case + Cass talk healthcare advocacy, teaching doctors, and navigating the medical world with vision impairment + rare disease.

#accessability: two photos of Cass and Case side by side participating in research

Ep 117. few but many: HPS conference 2025 Case +

Ep 117. few but many: HPS conference 2025

Case + Cass recap the HPS Network Conference weekend—the highs, lows, and the six-minute walk for awareness.

#accessibility: a photo of Case and Cass at the Saturday night dinner dressed in evening gowns in front of a glittery backdrop

#hermanskypudlaksyndrome

aren’t we just dolls? 🌸

aren’t we just dolls? 🌸

Ep 116. rare but radiant: our new and improved ski

Ep 116. rare but radiant: our new and improved skincare routines

Case + Cass share their skincare faves—from holy-grail cleansers to sunscreens, moisturizers, and acne must-haves.

#accessibility: Cass and Case standing on either side of NOAH’s mascot “Spiffy” (a large SPF sunscreen bottle) and kissing his cheeks.

#raredisease #legallyblind #albinism #visuallyimpaired #hermanskypudlaksyndrome

Ep 115. internet fan meetups, unicorn snot, & tryi

Ep 115. internet fan meetups, unicorn snot, & trying to see the jumbotron

Case + Cass share concert stories, artist and fan meet-ups, and the accommodations that help them rock out—even at music festivals!

#accessability: two photos side by side of Cass and Case smiling while attending concerts/music festivals. Pink text reads “episode 115”

#albinism #legallyblind #raredisease #visuallyimpaired

Ep 114. please, read the room!!! Case + Cass disc

Ep 114. please, read the room!!!

Case + Cass discuss reading the room—when to disclose disabilities for accommodations and when it’s okay to let things go.

#accessability: a photo of Cass and Case posing on the highline in NYC! They are both holding their canes and smiling. Text reads “episode 114”

#podcast #podcasts #raredisease #legallyblind #visusllyimpaired

Ep 113. an instagram reel revealed who we really a

Ep 113. an instagram reel revealed who we really are

Case + Cass explore their personalities in a new way through the lens of personality tests from Instagram reels.

#accessability: A photo of Case and Cass smiling together in front of a colorful alleyway with flowers surrounding them. Pink text reads “Episode 13”

#podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 112. a grocery delivery shopper yelled at cass?

Ep 112. a grocery delivery shopper yelled at cass??

Case + Cass talk about the grocery delivery services they use, shocking mishaps, and the kindest shoppers who went above and beyond.

#accessability: a photo of Cass and Case at a market smiling. Text reads “Episode 112”

#podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 111. lifting the burden: how we pay it forward

Ep 111. lifting the burden: how we pay it forward

Case + Cass share how they pay it forward, from thanking friends for rides to showing care for loved ones in thoughtful ways.

#accessability: Case and Cass laugh while drinking tea together.

#podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 110. are we ready to thrive in 2025? Case + Ca

Ep 110. are we ready to thrive in 2025?

Case + Cass share their 2025 vision boards, their word for the year, and what they plan to stop, start, or continue in the new year.

#accessability: a photo of Case and Cass on a dance floor with a friend dancing and smiling in formal attire

#podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 109. our wildest vision board dreams came true!

Ep 109. our wildest vision board dreams came true!

Case + Cass review their vision boards for 2024 to see how their years measured up. They also give highlights of their year in seasons.

#accessability: a photo of Case with her new red hair next to a photo of Cass at the Eras tour. Pink text reads “episode 109”

#podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 108. the wound that never heals: our discrimina

Ep 108. the wound that never heals: our discrimination stories

Case & Cass share frustrating discrimination experiences—rideshare denials, job stories, and some shocking, never-told moments.

#accessability: two photos of Cass and Case side by side. Cassandra is getting licked on the face by her guide dog and Casey is outside walking her pet dog. Text reads “episode 108”

#podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome #discriminacion

Ep 107. blind gamer girlies Case + Cass chat abou

Ep 107. blind gamer girlies

Case + Cass chat about childhood video games, what they play now, and their tips for making gaming more accessible with low vision.

Case + Cass talk about how, despite their best efforts, they always look a little odd in public when trying to look “normal.”

#accessibility: Case and Cass pose smiling with their canes in front of The Book Loft in Ohio

#podcast #podcastersofinstagram #podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 106. we’re delulu about what we look like in

Ep 106. we’re delulu about what we look like in public

Case + Cass talk about how, despite their best efforts, they always look a little odd in public when trying to look “normal.”

#accessibility: two photos of Case and Cass side by side candle making. They are both looking closely at what they are doing (while trying to look normal). Text reads episode 106.

#podcast #podcastersofinstagram #podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 105. case & cass’ carTWOon adventures Case +

Ep 105. case & cass’ carTWOon adventures

Case + Cass talk about four more cartoons they’ve watched together in the last year and a half and plug other cartoons they’ve seen lately.

#accessibility: a photo of Cass and Case hugging in Cassandra’s living room. Text reads “episode 105”

#podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 104. did they really just say that?! Case + Ca

Ep 104. did they really just say that?!

Case + Cass share the uncomfortable, rude, silly, and ableist things people have said to them in public about their vision.

#accessibility: a photo of Cass and Case shopping together and looking through rack of clothing. Text reads “episode 94”

#podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 103. live from columbus: recapping our amazing

Ep 103. live from columbus: recapping our amazing weekend

Case visits Cass in Columbus! The two recap their jam packed weekend of candles, bookstores, bakeries, and the renaissance fair.

#accessibility A photo of Cass and Casey standing in front of a large castle at the Ren Fair dressed as Pearl and Lapis Lazuli from Steven Universe. Text reads episode 103

#podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 102. white cane hot takes Case + Cass bought n

Ep 102. white cane hot takes

Case + Cass bought new canes and give their reviews. They also share hot takes on different cane styles and explain the benefits of cane use.

#accessibility: two photos of Case ms Cass side by side. They both pose with their new canes. Text reads “episode 102”

#podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 101. cass has curly hair & case is running?! C

Ep 101. cass has curly hair & case is running?!

Case + Cass talk about what they’ve been into lately, including self-care, hobbies, side hustles, and media they’ve enjoyed.

#accessibility: two photos of Case ms Cass side by side. Cass is wearing her hair naturally curly and Case is running. Pink text reads “episode 101”

#podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

Ep 100. over one hundred hours of us yapping!!! C

Ep 100. over one hundred hours of us yapping!!!

Case + Cass celebrate releasing over 100 episodes and list their all-time favorites along with other episodes they’re proud of.

#accessibility: a photo (taken by Rick Guidotti of @positiveexposure) of Cassandra and Casey smiling together at the NOAH Conference. Text reads “episode 100”

#podcastlife #podcasts #blind #legallyblind #lowvision #visuallyimpaired #raredisease #albinism #albinismawareness #disability #disabilityawareness
#ostomy #ostomate #ostomyawareness #crohnsdisease #crohns #chronicillness #hermanskypudlaksyndrome

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episodes
hello
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what is HPS?
contact us
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Rare with Flair © 2025 | designed by Cassandra Mendez